What is the National Data Opt-Out Programme?
The national data opt-out is a new service that allows patients to opt out of their confidential patient information being used for research and planning. By 2020 all health and care organisations are required to be compliant with the national data opt-out policy.
This replaces the ‘Type 2’ objections which were introduced in 2014 to allow patients who did not want their confidential patient data to be used beyond NHS Digital to register their objection with their GP.
NHS Digital have provided examples and further guidance on how data may be used for research and planning here.
Exceptions to National Data Opt-Outs
It is important to note that National Data Opt-Outs do not apply to confidential patient information disclosed by NHS Digital in some situations. These are,
- Any mandatory legal requirements such as court orders or disclosure to the CQC
- Where you have consented to the use of your information for a specific purpose such as a research study. This overrides your opt-out preference
- Information to support individual care and treatment
- Information not considered personal confidential information such as patient demographic information
- Data available in anonymised form
- To support the management of communicable diseases and other risks to public health
How to make your choice
If you wish to object to your data being used for research and planning, you can make your choice at https://www.nhs.uk/your-nhs-data-matters/manage-your-choice/